65Roses4PattySue Trust Fund

In 2005 my wife Gail along with Tricia's parents Don and Agnes created a trust fund designed to assist Tricia with the collateral expenses that would come with her CF treatment and eventual transplant.  At that time we sent out letters to family and friends, inviting them to give if they chose to do so.  

The result was extremely helpful as Nathan and Tricia spent 9 months living near Duke University before and after the transplant. 

However, as her health improved, and trips to Duke became less frequent, the trust fund lost its steam.  Now, with her status very much changed, and already this year multiple trips to Duke, including the current hospitalization for rejection, we have reinvigorated the fund.  Below is a letter that appears on a Facebook group for donors.  

If you are not in that group and would like to be able to donate via PayPal, I've added a button at the top left of this blog site for your convenience. 

If the idea of donating is offensive to you, we are sorry.  Please refrain from negative comments.

Dear Friends of 65Roses4PattySue,

Amazing as it sounds, this past April 2 marked the 4th anniversary of the night Tricia was wheeled into an all night surgery that would give her a life-saving “new” pair of lungs. If you’ve followed either Nathan’s or Tricia’s blogs or their Facebook posts, you know how that while Tricia’s much healthier than pre-transplant, her overall health has been and will always be a roller coaster ride. But, who would have thought that she would again be able to play softball, sing in the choir and most of all mother her Gwyneth Rose?

Another milestone just passed as well. Tricia turned 30 on May 13. So, the Lawrensons, Kirschners and all who love her have much for which to be thankful.

When crises settle down, as Tricia’s did after the surgery and the subsequent battle with lymphoma, we tend to relax and even forget that she will always be a post-transplant and cystic fibrosis patient at Duke Medical Center. When we began the 65 Roses Trust Fund nearly four years ago it was during that time of crisis. The response from so many made it possible for Nathan and Tricia to stay in Durham during her pregnancy leading up to Gwyneth’s miraculous birth and then on through the transplant, recovery and cancer treatments.

Once again we’re appealing to Tricia’s friends to re-invigorate the trust fund. In March, as you may know, Tricia was diagnosed with acute and chronic rejection after a long bout with RSV and pneumonia. This new struggle is just as threatening to a transplant survivor as cancer, and very costly. Though they have a very good insurance policy, Tricia will always require costly medications to battle rejection and her Cystic Fibrosis. While the disease will not attack her new lungs, it continues to attack her pancreas and digestive system.

She also must frequently return to Duke for checkups and tests to ensure all is still well. And all this means travel, gas, meals and other expenses above and beyond what their insurance will cover. Already this year they have driven the 200 miles to Duke multiple times, and the trips will surely continue. For example, tests results from a trip on May 14 require a return trip on May 21 for anti-rejection medication. Just the cost of gas for these trips this year has already cost them hundreds of dollars.

So we are again asking you to consider helping financially as you are able. And we promise to send annual reminders for those inclined to partner with Tricia. If you are unable, we certainly understand. But we also know that any gift makes a difference.

Because this is a trust fund gifts are unfortunately not tax deductible. Whether you can make a one-time gift or perhaps give on a regular basis, all monies given are dispersed by fund trustees and only for expenses related to Tricia’s continued medical care.

Gifts can be sent to 137 Sir Chandler Dr., Kill Devil Hills, NC 27948. Please make checks out to “65 Roses 4 Patty Sue”. Funds received are disbursed by trustees (her parents and in-laws) according to actual costs relating to treatment of Tricia’s disease not covered by insurance.

We will be looking into alternative payment options such as PayPal as well.

Thank you and God bless you.