[Because we're asked, "65Roses" is a common children's way of saying "cystic fibrosis", and "PattySue" is a nickname that Nathan sometimes uses for Tricia.]
In 2005 my wife Gail along with Tricia's parents Don and Agnes
created a trust fund designed to assist Tricia with the collateral
expenses that would come with her CF treatment and eventual transplant.
At that time we sent out letters to family and friends, inviting them
to give if they chose to do so.
The result was
extremely helpful as Nathan and Tricia spent 9 months living near Duke
University before and after the transplant.
as her health improved, and trips to Duke became less frequent, the
trust fund lost its steam. Now, with her status very much changed, and
already this year multiple trips to Duke, including the current
hospitalization for rejection, we have reinvigorated the fund. Below is
a letter that appears on a Facebook group for donors.
you are not in that group and would like to be able to donate via
PayPal, I've added a button at the top left of this blog site for your
If the idea of donating is offensive to you, we are sorry. Please refrain from negative comments.